Hi
I just happened to see the benefit article in the Forum. I was not able to go, but I
checked out Charity's website. I work at MeritCare and started reading it.
What a wonderful daughter with great memories.
She sounds like one in a million and a person who was special to so many. Yes, many
of the articles made me cry. How lucky you are to be touched by her. She is for sure
your guardian angel. Thanks for sharing your story. I'm sure she is
smiling down on you.

Dear Mrs. Kubalak,
My name is Mandy
and I live in New York City. I am 22 years old and I am not the type of person to
get very emotional. Somehow or someway I ended up on this site dedicated to your
daughter. I was so touched by the outpouring of love, pure love, that people in your
community had for your daughter. I probably would have never in my life met your
daughter, but in some way, I feel that my life, or at least my day, has been touched by an
angel. Charity seemed to be a great person and a great friend and from what I can
see, she got these attributes from her mother. I hope that in the short time since
her passing you have been able to find strength through the thoughts and prayers of those
touched by Charity. I'm sure she is in heaven looking down on you and your family.
With Love,
Mandy

Hello Judy,
In July of 2000 my 15yr old daughter Rayven had just returned home from a one week
basketball recruiting camp, she had just been home for 2 days when she was trying out for
the Jr. National basketball team in Washington D.C. During tryouts she collapsed to her
knee's & complained of severe chest pain but still wanted to continue playing ball. I
knew something was very serious when she started turning very pale. I rushed her to the
E.R which was right around the corner. Rayven was the star basketball player on her
varsity basketball team even though she was just a freshmen. The word had gotten out to
the colleges to keep a eye on this freshmen because she was so great in the game of
basketball.
When we got to the E.R. they told me they had to transfer Rayven to Children's Hospital
because they have better equipment were they can do further testing. It was at Children's
Hospital in Washington D.C. when they told my husband and I that our only child has
Hypertrophic Cardiomyapathy and that she is very very lucky to be alive. As I read
about you and Charity all I could do was cry. They also tested me and found out that I too
have Hypertrophic Cardiomyopathy. After 35yrs I had no clue that I had it until Rayven was
in ICU. I started getting chest pain but I thought it was stress because of
Rayven's situation but that's when they did the echo and I found out.
At this point Rayven is in denial that her basketball career is over.
We take one day at a time and enjoy life as much as we can. I thank God for making you
strong to make this web site.
May God Bless you & keep you & your family strong.
Samara

Dear Judy,
After reading your website, I wanted just to say God bless you for making such a lovely
and moving tribute to your beloved daughter. I am a pediatric nurse practitioner and
have worked for many years caring for children affected by cardiomyopathy and other heart
defects. Even though her life lasted only 16 years, Charity was obviously surrounded
by love and goodness. May she forever live in your heart and the warmth of His
love.

I have a friend who has been diagnosed
with IDC. He had been complaining with a mild aching sensation in his left shoulder
on and off for about 4 years (began in 1996). At this time he went to his regular
doctor and was told he had an enlarged heart but nothing to be alarmed about (right!).
Well, four years later (2000), he decided to have a cardiologist look into this.
His IDC was discovered and is now beginning Prinivil (5mg) as a start toward a drug
treatment regimen. After one week on Prinivil, the aching in his shoulder has
stopped, and there are no signs of CHF at this time. He is active and can complete a
full work day without getting overly tired. His EJ is 25, which is low but his
doctor said we should not get too hung up on numbers....it really depends on how he
generally feels that counts. He is 57 years old with no coronary artery disease.
His doctor is optimistic about his treatment and says I should be too. I just
wanted to relay the fact that there is always hope and to always keep a positive
attitude.
John

I would just like
to say how wonderful you have contributed a web-site for this disease and in memory of
your daughter. I had no idea that there was such a illness, and that it can affect
anyone at anytime. You have done a great job researching on this.
You are my age, I do not have any children, so I would not know the pain and loss that
you're feeling.
From reading the Memorial, you and your daughter shared an
enormous amount of love for each other, and most of all best of friends. I have lost
3 good friends in the past 6 months all at a very young age and all from different
circumstances. So I do know the loss of losing someone so close to us. Please
continue to do what you're doing. I would like to make a donation on this
special day 10/7/00 for Charity.
My prayers are with you and your family.
Lisa

Dear Judy,
I am not quite old enough to regularly read the obit page, but
yesterday was an exception.
What made it exceptional was that beautiful photo of Charity Mae.
Such a fresh and exciting and lovely face. Never have I seen a photo which
showed such personality, and character. She must have been quite a young lady.
And then, I read your poem, and I shed a few tears. It was
truly from the heart, I could tell. Such poetry is rare in these days of television and
video games. And being a single father, it caused me to wonder if I would ever
be able to express such feelings in such a wonderful way, should something terrible happen
to my son. (He is now 11.) I appreciated it so much, that I cut it out, and now
carry it in my wallet.
Being in the television news business, I would like to extend an
invitation to you, and to Charity Mae, to be part of a story I would like to do about the
disease that took her away. Even though I have had a couple of heart attacks, I was
unaware of Charity's disease until I read about it on your website.
So this is an open invitation. Let me know if you would
like to go public in this fashion. If not, I certainly understand. No matter
what you decide, it will not affect the way I feel about yesterday's obit in the Forum.
It was the most beautiful tribute I could ever imagine. Thank you for it.
Sincerely,
Bruce

Dearest Judy,
My
mom, Patty, told me one day that she had run into an old friend, Judy, in Fargo. She
was telling me about how she had a "very, very pretty" daughter only a year
older than me. She had told me that Judy's daughter died from heart problems, and
not ever having met either of you, I felt very sad for the two of you. I thought
about how sad you must feel, but didn't think much about it again. Just last week,
my mom came into my room and put a newspaper clipping on the table by my bed. I just
let it sit there. When I was about to go to sleep, I looked at the clipping, and I
realized it was a girl and decided to read it. I actually started to cry. When
I saw the website (I just noticed it today) I came to it, and this is the most
beautiful, touching thing I've seen in a very long time. Of course, I'd been feeling
tears well up in my eyes the whole time, and finally, they started coming down like
a rainstorm. I almost felt sorry for myself for never having had the chance to meet
Charity. I hope that maybe we'll even meet some day. Thank you.
Chelsea

Hello Judy,
Your web site has moved me to tears. I lost my brother Sean
Patrick, 21 years young on September 5th, 2000. He was 10 years younger than me so,
even when he was over 6 foot tall, he was still my little brother. He always came to big
sister's bed when he was scared or just didn't want to go to sleep. He was always active
in sports basketball, soccer, tennis whatever he could do for good clean fun. He always
walked a straight line and was such a good boy! He was majoring in English
literature and wrote some amazing stories! I'd love to share them with you. He was
totally healthy, and his death was very unexpected. He had gone to get together with
some friends before everyone in his group went back to college, and he stayed back while
everyone went to get a bite to eat. He said he wasn't up to it. When they
returned they found him on the bathroom floor and were unable to bring him back. It
took forever for the medical examiner to come back with any answers. Not like this
helped but, they finally did.
God Bless you and your family. I hope Summer is growing
like a weed and hearing stories about her big sister every day.
Someone who cares in Oregon,
Monica

My name is Barbara. I too lost a son to cardiomyopathy, he was diagnosed in October
of 1998, died January 24, 1999. He was 31, he was married with 3 little girls and another
baby on the way, a little boy was born on April 24, 1999. On November 12, 1974 I also lost
a little boy to meningitis, he was 12 and a half months old. It is true the pain never
goes away, you learn to deal with it and live with it the best you can. My faith in
God also sustained me and keeps me going. I was thrilled that I found your web site.
I had no idea this disease was so prevalent. Your letter deeply touched me
and so much you wrote about I felt also. I would really like to hear from you,
as another one of the people who made a comment you feel so alone. Your daughter was
a very pretty girl, and it is so sad she had to die so young. Your web page has helped me
more than words can say. I was about to go get some counseling, I still may.
Everyday is a struggle, your web page helped me a lot. Thank you for being there.
Barbara

Dear Judy,
I just read pretty much everything on your WebPages. It is
very lovely and well put together. I went to school with Charity in Moorhead.
I went to her birthday party in 6th grade at the Kelly Inn, she was so much fun.
Always a happy girl. I remember when she got together with one of her boyfriends,
she screamed she was so happy! I have her school pictures up in my room that she
gave me. I still remember the funeral. That was my first real funeral. I
mean, I've had grandparents pass away, but this was different. This was someone my
age, someone I was friends with, someone I knew. We had so much fun in Moorhead, she
was so special. We had lost touch when she moved, but I will never forget her.
She still had a huge impact on me when I heard what had happened. I give you all
the support I can and greatly admire you for how strong you have been and how strong you
are. If you ever need anything, don't hesitate to ask.
Sincerely,
Leah

Dear Judy,
We just saw your special about Charity on TV and I had to write
and tell you that I, also felt Charity was a gift from God. She was one of the
most beautiful people I have ever met. I did not know her long but will never forget
her. You are carrying on her legacy beautifully. God bless.
Russ, Barb, Matti and Ali

Dear Judy,
My name is Sue, I live in Australia. I found your web site
whilst looking up information relating to Dilated Cardiomyopathy, as I lost my son 6 weeks
ago today. We had to wait for the coroners report to come back before we knew how he
passed away, as he died suddenly and we did not know the reason why till yesterday.
He was only 19 years old, and I am still having terrible problems coming to terms with his
loss.
I read what you wrote and really appreciated the words, as it is very similar to what I am
starting to go through now. I don't understand why this has happened, I am still
searching for answers, I know the medical reason now why he died, but I still don't
understand why. Do you understand what I am saying? Could you please write to me.
I really need someone who has experienced the same thing to talk to, at the moment
I feel so very alone, everyone seems to be getting on with their lives, but I feel like my
life is just standing completely still and I don't have the ability to move forward.
I wish the world would just stop for a little while, whilst I try to come to terms
with what is happening.

When I was flipping through news channels a few weeks ago I came across channel 4 where I
heard your story. I am a single parent mom to Amanda who is 13. Amanda has a
rare progressive neuro-muscular disease with cardiomyopathy. Because of her
neuro-muscular disease Amanda will never be approved for a heart transplant. I had a
choice to start her on Beta Blockers but the side effects were that it would cause her FA
to progress much faster and she would be very weak. In fact, it was Amanda who said she
did not want to live like that and would rather go " sleeping". Your story
really touched me and thank you for sharing!
Amanda was running in races and riding a 10 speed just three years ago. Today she is in a
wheelchair. Her attitude also is unbelievable! A w/c does not slow her down the least! She
is a cheerleader and she even rollerblades in her chair. She is one of the strongest
person's I know! And like Charity she is very giving! Her dream is to be a
missionary. Thanks again for sharing your story!
Martha

I have watched your website and have read your memorials in the paper, after having your
daughter catch my eye upon her passing, those years ago. There is something truly
unique about your daughter, but equally so, is something unique about the mother that so
opens her heart to her words. What a team you two make. Her passing was not in
vain, for what you are making of it, and showing people, through example, how to live and
love their children. You are doing a good work with a very tough job. God
bless your daughter and you.

This morning I finally got around to
looking at yesterday's Forum, I happened to see your memorial for Charity Mae. It
really touched me and I had to take a look at this web site. What a beautiful girl Charity
was. I pray I never have to experience the pain you must have. The reason it took me until
so late yesterday to get to the paper, is that I was at the hospital. My first grandchild
was born last night, a beautiful little girl, what a gift from God. It makes me appreciate
her even more having seen your memorial this morning. May God Bless you and provide you
comfort.
Mark

Dear Judy, I have just read the moving story of your beautiful daughter's life. I had seen
a memorial to Charity from you in the paper which also listed your website. I have
not experienced the loss of a child but have lost many people including my mom nearly 2
years ago. I have also been by the side as 2 families lost their children after
bone-marrow transplants. It was heart-wrenching! I am writing to thank you for
the gift of Charity's life and your memories of her. I thank you too for the sight
of the place where her body lays to rest but her spirit soars. I hate to admit this,
but today I was "feeling sorry for myself" because my son, daughter, &
son-in-law were supposed to come this weekend to celebrate my son's 24th birthday.
They didn't come. But I can still speak to them on the phone, e-mail them, and hug
them when I do see them! Today was put into perspective by visiting this priceless
website! My thoughts and prayers are with you , especially tomorrow on the
anniversary of Charity's death.

Dear Judy, After seeing Charity's web site in the Fargo Forum last week I decided to
go into it. What a beautiful daughter you have. You must be so proud of her. I have
a 5 year old son who was born with several problems and to date has had 14 surgeries and
been hospitalized more than 25 times. I know exactly what you were feeling when the nurse
would come with the IVs and want you to hold her down. I feel that same pain with
Dillon. I see the tears rolling down the cheeks. They try to be so brave! I hope I
will never have to experience your pain but , if I do, I will look to you for the
strength. Your web site is wonderful. I cried while reading each and every article.
Your Charity is in a wonderful place and is happier than any of us! I hope you can
find peace in knowing that. Thank you for sharing your personal story with us.
I use to ask "why" me when Dillon was sick and after reading your stories
I will never ask "why" again...I now know the answer. Thank you!
Jill

I'm very sorry for your loss. My
youngest sister lost her 9 month old daughter Christin to this as well. It wasn't
anything we expected at all. We didn't even know she was sick. She started
losing her strength and we thought she had a cold. It was New Years Eve 1999, so we
took her to the hospital on Friday night and they told us she may not make it through the
night. She died on 01-02-00.

I have tried for months to find out all I could about this terrible devastating disease. I
have Hypertrophic Cardiomyopathy. I have been told it is hereditary in my case my father
came from a very large family and only 3 brothers and sisters made it past 48 years old. I
was diagnosed 1989 at age 41 our youngest daughter's senior year. For two years I put off
surgery because the odds they gave me were not good. Finally I decided I couldn't live my
life like this anymore and had open heart. Was better for a time but still was on a lot of
medication. Twenty-two pills a day and if I miss any of them I know it. In 1998 I started
having more problems and had to have a pace maker put in with a defibrillator. It is so
uncomfortable that I can hardly wear a bra. I was told it would probably last 5 years.
Well, it's time to change the batteries because it is pacing my heart 80% of the time and
the batteries are about shot. I'm trying to decide if it is worth going through another
surgery if my heart is that shot.

I saw Charity's poem in an older issue of the Forum. I had to check out what this
beautiful young lady died of. I read every word about Charity's life. Your
website is wonderful.
Ellen

I came across this website by accident, but read the entire website. I'm from Maryland.
Don't know anyone who has this, but the entire site made me cry. I guess because two years
ago, my fiancée passed away, and it was just me and his soon to be born son. Life
sometimes is so sad, and yet we still don't understand why certain things happen. It is
however, comforting to know that someone, across the world cares enough to give you their
deepest thoughts and concerns. Even though two years have gone by, and I have been told by
man that life for him in Heaven is much better here, I have a problem understanding that.
Maybe it's me who is being selfish, but I think life down here would have been good for
him too, then my son could have his father, and they could have that father and son bond.
Again, I will pray for you and your family.
Toyshika

Dear Judy
You may not know me but my name is Bethany. I am from Minot and I was really close with
Charity. I think about her everyday and wonder why it had to be her. I
considered her one of my closest friends. The summer before she passed away we had
gone to the movie Spawn. We both had a blast that night telling scary stories and
just making each other laugh. She was a very sweet person and everyone loved her.
I remember the times when she was coming here to Minot to stay and I was always
excited and wondered why it took so long to get here, then I realized why when I rode with
one time. She had to show me her dog and all her stuff. She is missed very
much by everyone in our family. Her memory will never be forgotten by me. When
you go to talk to her tell her I love her and miss her very much.
Sincerely,
Bethany

Judy, my heart goes out to you. What a beautiful child. I understand the pain you are
going through. My daughter Kendra (25 years old) gave birth to her first child on January
11, 2001. Six days later on January 17, 2001, my beautiful daughter was gone. The autopsy
stated dilated cardiomyopathy-pregnancy induced. We had no idea there was a problem and
had never heard of peripartum cardiomyopathy which is another name for what happened to
Kendra. No mother should have to endure the death of a child, but as you know, we don't
get to make that choice. I was at the hospital with her from the time they induced labor
until she went home. I live about an hour away, so I came home after we got her to the
house and settled in on a Sunday night. My sixteen year old son had been there with me the
whole time also. We cried all the way home because we missed her already. I talked to her
Monday night, and again on Tuesday night. The last thing I told her was "I love
you". Wednesday morning she was gone. I miss her so much.

Dear Judy - I want to thank you for letting everyone read about your beautiful daughter
Charity, she is an inspiration. In 1992 I awoke to a phone call informing us that my
17 year old brother, RJ, had been rushed to hospital after he collapsed playing sport.
He could not be revived. I will never forget the young Dr who was working on
him, she was so upset when she told us that he had died. Two years previous, we had
been told that RJ had a benign arrhythmia that he would grow out of. At autopsy he
was found to have severe idiopathic dilated cardiomyopathy. How I hate those words.
The agony my parents went through is unmentionable, once my Dad told me that he is
now just passing time until he dies and my mother could not look at me for months because
RJ and I look so alike. Everything you have written rings true for me as well.
For many years I had so much hate and fear inside of me I thought I would explode.
I am still scared that I will develop IDC as well ( I am 30 soon), but I am not
angry anymore.Thank you Judy.

Dear Judy,
My deepest sympathy for your tragic loss. Somehow, all this time, I've believed that
there's nothing anyone can do or say to lessen the pain. But somehow, reading your story
comforted me in a unique way. So, I though maybe my story can make you feel a little
better even if it's just for a little while. My boyfriend, 26 year old, died in his sleep
right next to me on May 14th, 2000. I had woken up that morning because he was snoring
loud. I tried to wake him up because it was too loud for me to go back to sleep. He
wouldn't wake up after several tries, so I gave up because I knew he always had trouble
going back to sleep once woken up in the morning. I went back to sleep and woke up an hour
later. I knew the minute I saw him that he was gone. The ambulance came soon after but it
was too late. How I wish I knew that the loud snoring I heard was his last few breaths.
I'm not claiming that I know how you feel. I know that I don't in the same way that nobody
knows how I feel.

Hi my name is Sara, 17, and I have been on here several times reading everything that has
been included. I shed tears everytime I read it. I think everyday of losing
someone close to me and how I would not be able to handle the situation. You both
are so lucky to have had each other and spent so much time together. My mom and I
aren't that close but after reading this made me realize how short life really is. I
think everyone should know about this, it is told so well and seemed like it was so great
to have someone like her. I have a friend named Charity Mae and that is how we found
this website by just typing in her name. She reminds me so much of your Charity.
She is the dearest person and is sweet to everyone.

This is the first time I have ever heard of this
disease. I have truly enjoyed reading everything about Charity's life. It
seems so wonderful to have had someone so special and gifted. By reading this story
it makes me want to be a better person toward everyone because you never know how short
life is. Thank you for helping me realize that Charity.
Sincerely Yours,
Sara

Dear Judy,
What a beautiful web site and tribute to your daughter. I am so sorry for your loss. I
can't even begin to imagine what you are feeling. I found your web site while doing a
search for information on cardiomyopathy. I am a 34 year-old mother of three who was
recently diagnosed with cardiomyopathy. Mine is a post partum condition that was detected
10 days after the birth of my son. What a shock this has been. I spent 3 days in Cardiac
ICU and 2 days in progressive CCU. The doctors told us how rare this condition is. In my
search I am having a difficult time finding specific information on post-partum
cardiomyopathy. I know a lot of the information does apply to me at this point. I will be
on medications for the rest of my life as well as a cardiac diet and restricted life
style. My question for you is, have you ever run across this in all your research? Again,
I must commend you for a wonderful site. I would love to see a site like this dedicated to
post-partum cardiomyopathy as well.
God Bless,
Roxanne

Hello Judy, my name is Mindy and I was a
very good friend of Charity when she lived in Moorhead. There isn't a day that goes by
that I do not think of Charity and the many lives she touched. She had so much life left
to give. There was also many days that I would sit and contemplate about why this would
happen to her of all people, but I finally got over it and realized that God wanted her to
come home. I do not know if you remember me or not, but I was at the prayer service,
funeral and the burial. Every time that I come back onto this site I cry. I hope you and
your family are doing better as the time goes by even though you will never forget
Charity.

Judy:
Thank you for your informative web site about cardiomyopathy. My husband died of
idiopathic dilated cardiomyopathy last May. He was 43. Sudden death was his first symptom.
I would like to do fund raising for cardiomyopathy research, and I plan to organize
motorcycle events (similar to the "Love Ride" in Los Angeles) for this purpose.
I would appreciate any information you can pass along regarding setting up a charitable
foundation, and any information in general.

I happened to find this site by accident
but I have been one of the privileged few to read it. I never knew Charity Mae but now she
and all of the family will be in my prayers. Thank you for opening your hearts to
strangers and touching the lives of others. My heart is with you.
Lindsey

Hi Judy,
I am so very sorry. I have never lost anyone close to me but I can only imagine the
emptiness you feel. This site is wonderful and I cried all the way through. You see my
husband was told during a check-up in 99 that he has idiopathic cardiomyopathy our
regular doctor acted as if medicine would take care of it and that our two children needed
to be tested as well. They were 5 and 11 at the time and they were both negative. What a
relief ! Then after researching I found they could develop it later in life and sometimes
it doesnt show up until after puberty. Am I correct? I live with this everyday. They
are both active in sports and the doctors say keep letting them play until if or when they
were diagnosed. My mother and father in-laws are negative and both sister in-laws so we
dont know of anyone in the family who has this disease.

Thank you for your web site and the
information it provides. I have been told I have cardiomyopathy. I was in the hospital 21
May 01, with chest and arm pain. This is when I found out. My grandmother had this
condition. I found your web site while researching the problem. I read on one site that
only 50% live 5 yrs once heart failure is diagnosed. I did have heart failure. This is
very scary as I had plans for the future and a family. Now I do not know which way to
turn. I am still weak on this day, 10 Jul 01. It seems that I cannot get my strength back.
I have not told the wife yet of the outcome of the disease and the progression. I really
don't know how. Thanks for the information and inspirational story. I got more information
from you than my doctors have given me thus far. I am a 38 yr old male.
Cherokee Cowboy Austin, TX

I like that you wrote the lyrics to
"Fly Away", by Poe. That is my favorite song in the entire world. It is sooo
pretty. I only heard half of it, but it sounds beautiful. It would be cool if you had a
link that let people listen to it. Laterzzzzzzzzzz.

Hello Judy,
First of all let me say how truly sorry I am about your daughter. I have a son Ryan 12 and
just found out he has dilated cardiomyopathy. He started complaining when he was 10 about
rapid heartbeat, so I took him to Hopkins to have him checked out. They said it was SVT. I
went for a second opinion and they found his heart to be enlarged to 4.9. The second yr.
it was 5.2. I panicked and went back to Hopkins to a great doctor that I felt I could
trust Ryans life to and he checked him out. He said to bring him back this year in
June2001. He went in and his heart has enlarged to 5.7 and the constriction has dropped 3
points. The doctor put him on diuretics and blood pressure meds and wants to see him in 6
months now. Im running scared to be frank. I don't know anyone else who has went
through this. I just happened to find your web site and believe me I cried for you and
your daughter. I just wish to God in heaven there was something to help people who are
suffering with this. Ryan also has mitral valve prolapse.

Judy,
As I have been researching your family history the internet has been a godsend. I knew
that your daughter had died, but couldn't remember the cause. As I was searching the net I
came upon your beautiful tribute. I spent most of Sunday PM reading from it. Every page,
every comment!! This is a wonderful way to celebrate someones life.
Dan

Ms.Kubalak,
I just happened to be searching for help or answers to help me write a eulogy for a friend
who died in a tragic accident. I came across your memorial to your daughter. I can tell
that your faith in God has kept you going over the years. You never know what to say when
someone you love very much is taken. May God keep you in his blessings. Someone once told
me that every time God calls one of his children home he places a star in the heavens to
shine down on those they leave behind. If that is true, pick out the brightest star
tonight and that will be Charity smiling down from heaven.
God Bless
Gary

Dear Judy,
I found your website while looking for information on cardiomyopathy. What a beautiful
tribute to such a special young woman! I was diagnosed with peri-partum cardiomyopathy in
Sep.00, a month after my first child was born. My EF was 10-15% when diagnosed, and it had
risen to 53% by April 3, 2001. I know myself and my family were devastated with the
diagnosis. I can only hope that I can have the courage to keep on living and filling every
day with love as Charity did. My heart and love go out to you and your family.
Caroline
P.S. If my child had been a girl, her name would have been Summer!

Judy my husband was diagnosed with
idiopathic cardiomyopathy in July of this year. His EF at admittance to the ER was 15%. He
also has severe mitral and tricuspid insufficiency. Now almost 2 months later instead of
being 3+ severe, both valves have improved to 1-2+, but what concerns me is that his left
ventricle is still significantly enlarged. The doctor has stated that in 3 months time if
there is no improvement or his condition deteriorates, then he will perform a cardiac cath
and possibly place him on a transplant list. I'm scared to say the least. My husband is 46
and has been a landscaper almost his entire life and also a construction worker. He has
always been physically active and now he can't do anything physical except take short
walks, then he is tired and needs to rest. It's tough to see him like this and with all
those meds that make him dizzy and sometimes in what appears to be a stupor (beta-blocker)
is depressing to him. It's ironic that his nephew had a heart transplant when he was 15
for the same condition that the doctors say my husband has. I've done a lot of reading on
cardiomyopathy and this could possibly run in families. How do we find out for sure? I am
so sorry about your loss, but your website has really touched my life. If you know of
anywhere I might get more information on cardiomyopthy in families, please write back and
keep us in your prayers. We see the cardiologist again the middle of September. I tell my
husband at least 3 times a day that I love him and give him as many hugs as possible.
Diana

Hello, my name is Frank and I have
cardiomyopathy. At 36 I had a pacemaker and defibrillator put in. I also have had 4
ablations and over 12 cardioversions. My mother has it also and had a stroke that left her
in a wheelchair not being able to walk again. My brother has it also and is in flutter
with clots around his heart. We wait for a cure. The doctors say in 2 years they may be
able to get to the bottom of this.

Hi Judy,
I was deeply touched by your daughter's web site. She is so beautiful and I say is because
she is alive in heaven. We too have lost our daughter. Her web site is http://pages.prodigy.net/raknerud please
visit.
Jennifer

Dearest Judy,
My family was in Fargo this weekend and saw the pictures of Charity in the Sunday paper.
My daughters and I were in awe at just how very beautiful your daughter was. We are so
sorry for all you have gone through. But wish to thank you for sharing your story of your
beautiful daughter. My daughters are 17, 16 & 15. Your story helped us realize how
short and precious life is. I know your beautiful daughter is still with you. She was an
angel on earth in life and in death. God bless you and your family. We are praying for
you.
Connie

Dear Judy,
My own 17 year old daughter was diagnosed with cardiomyopathy last May 2001. My mother
died from this disease 10 years ago. I was told it was not genetic, but my daughter is
experiencing the same symptoms my mother did. She is on digoxin and a blood pressure
medication to prolong her life. I am so sad reading about your beautiful Charity and
realize I will probably have the same awful experience in my future. I have been looking
for some support groups for my daughter and I.. Most of the patients are old people who
have already had a stroke. Did you find any support groups for younger patients? My sweet
daughter is still in the denial stages of lose. We have visited counselors to no avail.
She believes she has been misdiagnosed. Of course the more she finds out about this
condition, the more she fights the outcome. She wears a medic alert bracelet, but hides it
with a huge watch covering it! She looks a lot like your Charity did, with the gorgeous
brown hair and angelic face. She was also a cheerleader in high school! I just keep
wondering why God wants to take her away from me! Will you please write back with
comments. Thank you very much.

My dad died a few days ago of a heart
attack - part of his condition was cardiomyopathy. I must say that I have found your
website so calming and healing and I have read most of it. Charity Mae sounded like a
special person and the bond that you both shared will live on forever. Clearly she had a
loving & caring mom who gave her all the right tools to help her deal with her
condition and to enable her to get the best out of life. I was so encouraged to read of
her standing up for the "fat" boy in school - she had integrity and obviously a
joy for life and for all the good things in it. I also think it is wonderful that Charity
Mae met and got to know Summer before she died - I am sure Summer will benefit from that
in the future. I wish you and your family all the best in the future.
Angela

Hi. We live in Wausau, WI and my ll yr
old daughter was diagnosed with idiopathic dilated cardiomyopathy 10 months ago. She is on
aggressive drug therapy and attends school part time still but is resuming some physical
activity at her own pace ( ballet, and roller skating.) She still has a lot of arrhythmias
and her ejection fraction is 45%. Her heart is enlarged. She still is fatigued a lot and
easily. I have been so scared. Do you have any advice? We have taken her to Minneapolis
and Marshfield for treatment. Initially, she was in intensive care for 10 days, but her
follow up appointments are every 3 months now and sound like your description: echos,
holters, stress tests etc. Her physicians haven't given me a lot of information as to what
to expect in the future and the prognosis of children with cardiomyopathies because it is
so rare. They presume she had a viral myocarditis that caused this, but never confirmed
it.

Judy,
It's been a long time since I had communication with you and your family. I apologize for
that. Please know that it is not because I have forgotten, know that I think and speak of
Charity often and not once have I ever spoken her name or envisioned her without Charity
bringing a smile to my face and ease to my mind. I knew Charity from early in Moorhead and
lived many important and influential years with her near by. Her style and grace greatly
shaped my character into the person I am today. Even four years later I find myself
thinking of her, her smile and the impact her presence had on my life. She'll always hold
a special portion of my heart of which no one could ever replace. Now that I am older I
can't help but realize how lucky I was to have someone so special, so unique and so loving
in my life. The days I feel that life has done me wrong I honestly step back and find that
we were given the most beautiful gift possible of which far too many people will never
have the opportunity to know such love. I hope this finds you well and I wish you and your
family nothing but the best.
Sincerely,
Cullin

My great sympathy to you in your loss so
overwhelming.

Dear Judy:
I was reading the Fargo Forum this morning and came across your memorial for Charity. I
visited the website you have in memory of Charity. Within minutes, I had tears in my eyes.
I have read through the entire website and will be checking it often. What a wonderful
mother you are. Charity would be so proud of you. God Bless You! Sincerely, Kim

We lost a dear daughter also very
suddenly and tragically, but this was due to a drunk driver who hit my daughter as she was
going back to her dormitory. She was only 21 years old and a nursing student at University
of St. Thomas and College of St. Catherines in St. Paul. Jennifer gave generously
her heart, kidneys, pancreas and liver so others could go on living the life she so
enjoyed. We know the sorrow, pain and anguish of losing someone so beautiful and so full
of life. Our thoughts.
Don and Judy

Judy,
I read your poem for Charity, in the Forum tonight, I was so moved by her angel face, I
had to go & find out more about her so I went to the Website, I read the whole entire
site & I felt her there with me. I have two boys 7 & 4, you have truly woke me up
to what it is all about, it is about loving your kids every minute & making the most
of everyday we are on this earth. I have not experienced losing a child but my mother did
as my brother died when he was 18, I was pretty young & didn't understand the pain she
was feeling but I remember the loneliness. People avoided us, I think not knowing what to
say to comfort our pain. Mom & I talk as if he died yesterday she has so many memories
, that & her faith keep her going as it was 26 years ago. God Bless you for sharing
Charity & touching so many lives you are truly an inspiration to me as a mother &
I will not ever let a day go by without hugging & kissing my boys. I am going to pray
for you & Charity tonight.
Sue

Dear Judy,
I was looking up articles about dilated cardiomyopathy and I came across your website. My
son Matt became ill suddenly on Feb 4, 1999 and was transferred immediately to Stanford
University Hospital in Palo Alto, Ca. He was diagnosed with idiopathic dilated
cardiomyopathy. He was 16 years old. For 3 and a half weeks they tried to stabilize him
but he just got progressively worse. On March 1 they told us he had less than 48 hours to
live and needed an LVAD to stay alive . He had surgery on March 2. It was heartbreaking to
see such a strong and vibrant young man suffer so much. However , he was very blessed
because just 5 weeks later he got a heart transplant on April 6, 1999. He is now 19 years
old and is doing very well. He was a great football player and had many colleges
interested in him. He lost that dream but he is alive. He now works for Southwest
Airlines. I cried when I read Charity Mae's story. I will never forget all the children I
saw suffer when Matt was in the PICU.

Hi Judy,
You did such a wonderful job at telling the people about the heart and how it all works
and the disease etc. It must have been such a shock for you to so suddenly lose your
daughter since she was still able to go to school, cheer lead, and function etc. My dear
sweet husband (who I married when he was 22 years old) has had very severe health problems
and weakness ever since the young age of just 12. He has very little strength, and used to
always have weak spells where he would suddenly involuntarily collapse onto the floor, and
sometimes pass out. We tried to get medical help for many years, but because he was so
young, the doctors never dreamed that he could be having heart problems, and often told
him it was all in his head. Can you imagine that? How frustrating and how hurtful. Anyway,
my husband Garry, was able to work a job (although he had a great deal of sick days, and
always had to use up his vacation days for sick time) until he was 31. At that time he
became completely and totally bedridden. Well, I certainly thank God that my husband lived
through all that and that he is alive today, but Garry suffers every single minute of
every single day, except for when he's asleep. Sometimes he wishes he weren't alive, and
could just go be with God in heaven where there are no more tears and no more pain, but I
guess God has a purpose for him being here. But every single day is filled with grief and
pain. When I come home and see him hurting so much in so much physical pain as well as
emotional pain and depression, it's extremely difficult to deal with, because I have to
watch him suffer so much all the time every day. He can do very little (if anything at
times). He's doing really well just to go out to eat once in a while like on our
anniversaries or birthdays sometimes. There have been many times when we couldn't go out
to eat on our anniversary or other times because he was just too sick and too weak. Both
of our daughters fell into depression and got drugs from other teens at school. I
certainly feel for you and the fact that you lost your daughter, but I also am happy for
you in that your daughter was able to still go to school and participate in things and be
a cheer leader and so on, and that while she was here with you, she was able to enjoy
herself and her relationship with you. Yes, it's sad that God took her home so soon, but
it's wonderful that He let her be active and do things while she was here. Always remember
to thank Him for that, just as I thank Him for allowing my husband to stay with me down
here, even though he can't do hardly anything and he suffers greatly every day. Thanks.
Sandy

Judy,
As my friend, Maggie, was looking on the internet to find some poems she came across your
daughter's website. We spent a lot of time looking through everything. I think that it is
so great to see all of those things that her friends and family wrote about her. She
sounds like she was a great girl. You must feel very blessed and proud to be her mother.
After reading all of this, I think that God has a plan for Charity. He needed Charity in a
better place to help other people. I can't even imagine the pain that you are feeling and
the suffering that Charity's friends and family have gone through. I have so much respect
for you and your daughter. I really wish there was some way I could reach out and help you
through everything that you have and are going through. If I could I would do anything to
help. I am just here to offer my sympathy to you and your family. I am sure that Charity
looks down upon you and Summer each and everyday and is very proud of the both of you as
you are of her.
With love and sympathy,
Tasha

Dear Judy,
I'm actually visiting your site for a school project, and when I searched
"eulogy" this sight was the first one I saw. My friend, Tasha, and I spent about
2 hours in our school computer lab reading about Charity and all the wonderful things
people had to say about her. I obviously don't know her or anything like that but I'm sure
she would have been worth knowing. She seems to have led a fun life and she lived it to
the fullest... or the most she could with in her16 years. I'm 16 years old, and I'm from
Sauk Centre, Minnesota. I have never had anyone close to me die before so the only thing I
could keep thinking was what if one of my close 16 year old friends had died? I can't
imagine all the pain I would go through. I want to tell you that after reading and
learning some things about Charity, I will think about her from time to time. She was very
gorgeous! That was one of the first things I noticed. Summer is very cute too and they
both have very nice names! Anyhow, I better get started with my project.
With Deepest Sympathy,
Maggie